Do you remember back in the 1990’s when a self-help guru boasted claims that any relationship could be fixed if we would just realize that men and women are wired differently? Men were apparently not of this world, they were Martians…. And us women? Well we were from Venus… and just knowing that fact was going to somehow change our lives…. Well John Gray, the author of the Mars/Venus books was actually on to something… We ARE wired differently… And that rings true for men and women that suffer from Chronic Pain.
A new survey on www.healthywomen.org shows the gender differences in how we experience and perceive chronic pain. This study is part of a new educational campaign, “She Said, He Said: Understanding Gender and Pain”.
Did you know that 59% of women believe that others view them as “complainers” in regards to their pain and only 36% of men feel the same? Did you know that just over half of women (53%) wish family members would take their pain more seriously, and almost 50% also believe that men are taken more seriously than women are in the Doctor’s office?
We might have differences when it comes to Chronic Pain, but we have some similarities as well. This study found similarities in areas such as pain intensity, and the effect that pain has on interpersonal relationships.
When it comes to chronic pain, are men and women living on different planets?
If you have a few minutes, click on the link and go check it out for yourself… It really was worth the read…
Eliminating some particular habits is one of the basic things for any Fibromyalgia and Chronic Fatigue patient, as well as for anybody who suffers of a chronic disease.
We did not become sick within a day, a week or a month. I dare say we did not even become sick within a year. One of the most successful physicians regarding fibromyalgia, Dr. Sacher, says that it takes more than 10 years until the body shows symptoms of fibromyalgia.
Chronic diseases take years and years to occur. That is why they are chronic. The good news is that it is entirely in our hands to change that.
Chronic sickness in itself is a bad habit and it involves a whole complex of several bad habits. The causes can be summed up in one word: distress. Chronic diseases go most of the time along with toxic and mental stress. On both we can get a handle. Both are entirely in our own hands.
A chronic disease calls for a change of our habits – ALWAYS.
When having a chronic illness like Fibromyalgia the most crucial thing is avoiding more acidity. The muscle pain you have comes to a great extent from acidity.
Step #1 in reducing acidity is: avoid sodas
fibromyalgia & acidoses (source of picture: quitsmokingonline.com)
This is very important. If you have any form of rheumatism, arthritis, weight problems, stiffness, etc. (or if you simply want to remain healthy) then you cannot afford to drink any soft-drinks (pop, soda), because they are very acidic and toxic. You really strictly have to avoid them. This is even more important when you have Fibromyalgia. If I were you I would not allow any exceptions here. Soft drinks make your body more acidic and this is exactly what you absolutely cannot have. (Ignore this point to your own peril.)
Of course this is also very much true for your children. If they never start drinking Coke and other pops they will not have to quit. Soft drinks are kind of addictive.
My suggestion is: replace any soft drinks with water. Your pursuit will reward you with extra money you can then invest in the right health products and high quality food. At the beginning you might face some “withdrawal symptoms”, but they are harmless. This is simply because the body can become addicted to sugar. But this does not mean that your body really needs it.
You have only one health Take care of it!
Hope and health,
Maja Iten
Natural Health & Life Coach
P.S. If you want to get more in-depth information on reducing acidity (acidoses) please go to http://fibroreliefmembership.com and sign up as a Free or a Gold Member. This article is part of the month #3 Fibro Health Letter for Free Members and week #6 issue for Gold Members. It’s a 17-page article not only explaining what to avoid but also giving alternatives.
Daily Health Check: Weight –189!!! THIS IS NOT GOOD!!!
Misc Morning Herbs – ✔
Allergy Drops – ✔
Prog. Cream – ✔
FM Check – ✔ –Ugh. Not feeling all that great. Again. It’s rainy, cold, and yucky out.
HARD DRIVE!!! BUSTED!!! Way to mess with ones weekend! Argh. I’m glad there are 4 computers in the house… or we’d have missed a message from friends coming to visit from RI!!! For the DAY ONLY!!! Argh!
I am sad to say as well… that I didn’t complete my objectives for this weekend. While I do have 2 more weekends to complete said objectives, I wanted to get further along than I did! Here is the recap of what I wanted to do:
1. Chair Backs… Should only take me an hour to make the other 4, then washing time
2. Kids Rooms…
3. Avery’s pillow
4. Gretchen Safe Cookies
5. Babies blankets for the boys
6. LAUNDRY – have to finish folding the LAUNDRY..
Here is what I did accomplish.
1. The Gretchen Safe Cookies… and I must admit they are pretty dang tasty!
2. Recovering the dining room chairs. I will add a picture soon… as soon as I get my computer at home fixed, which, as stated previously, IS BUSTED! But the chairs really look good!
3. I cut out the pieces for Avery’s pillow, tonight I have to sew it… the girl was using her brother’s all weekend…which you can imagine caused great distress to a 3 yr old boy, who kept reminding her that it had cars on it and was not a girl thing! Very funny, but I gotta get it done!
4. The Laundry… I literally folded 87 baskets of laundry. So I now have time to sew the previously mentioned pillow.
So with that… I still have the kids rooms to clean top to bottom, and the chair back covers, and… the baby blankets… which those are mostly fun… the cleaning not so much. And the straightening up of the house. But now, I need to add, go through each room as I clean and add stuff to the sell pile…
This weather! Ugh! It’s painful… my arms are currently in a kind of vibrating numb hurt. It’s starting to go to my chest and throat too. Its kind of a feeling like you want to throw up, but you know what it is, and you know you won’t, but you’d feel better if you did… My hips have the same feeling… but is less annoying as I am not moving them. I just dug out the heating pad for my lower back… I hate this. This would be the kind of day that I don’t want to pick anything up, because I do NOT trust my arms to work as I request. I really hope this goes away tomorrow, when it’s SUPPOSED to dry out. I’m really distressed about my weigh again. I don’t understand why it keeps going up. I guess I will be eating salad for awhile. Not that salad is bad, I hate doing that though, because when you eat just salad for awhile, then you actually eat FOOD, your weight just goes right back up. It’s really distressing. It’s also distressing when your mother mentions that your face looks like you are gaining weight. I am starting to wonder about getting a wii… and comparing that to the cost of a gym membership… somehow I don’t think that the flex spend would cover that… bugger.
I am trying a new thing for food this month as well. It’s called Angel Food Ministries, and you order the food online, and then it is delivered to a local church for pick up. This happens once a month. You go on the Saturday that is listed for pick up, and there you have it! If this works out it should be really fantastic and benefit both us, and the church where we pick it up. I’ll let you know.
OK… I need to go pick up lunch… so, have a good one!
I received an email from the National Fibromyalgia Association, and they have asked me to share something with the readers here at Graceful Agony.
The NFA publishes a magazine called Fibromyalgia Aware.
Many people do not know that there is a publication dedicated to those who live with this illness. In this publication you will find
Latest news in Research
general information and tips on health and well-being
A balanced approach to treatment options
Lifestyle and self-management techniques
A subscription to Fibromyalgia Aware can be purchased through the National Fibromyalgia Association website – it is $34.95USD per year – BUT- they are now offering this magazine for FREE online!!.
If you follow the last link, it will take you directly to a sample of this magazine. Once you register (for free) to the NFA website, you will be able to view the entire magazine for free.
This website has a plethora of resources, stories, articles, and an online community – so go take a look!
Hi everyone!! My apologies for not being able to post a tip last Tuesday, but as most of you know my precious laptop kicked the proverbial bucket! I am happy to say that a computer genius has had my laptop at the spa for the past week, and it is now well rested and a few pounds lighter, and hopefully it will be coming home in the next day or two!! YAY!! I can’t WAIT to have it back! I didn’t realize how lost I would be without it!!
Speaking of spas…. (okay lame segue! HA HA HA!) Today my tip is all about focusing on pampering as part of your treatment plan. Most of us bathe everyday (at least I hope we do!), it is one of the basics needs we mindlessly take care of everyday. If you are someone who suffers from chronic pain, bathing can even be considered a chore! How many times have you been too sore to stand in the shower for longer than a few minutes? And once you are in the shower, does it hurt to lift your arms above your head to wash your hair? Are you someone who loves to take a bath but on bad pain days you are not sure whether you will be able to get in and out of the bath on your own? See… for all you “normal” people out there ( I use that term affectionately to describe those who don’t suffer from daily pain), bathing is something you can do without having to take many factors into consideration… for us Chronics, it is a little more complicated!!
Which leads me to the tip this week – Take the time to make one night this week a spa night! Your body might just thank you for it!!
Hydrotherapy is the use of water to relieve pain and treat illness. It is a general term, but things such as underwater massage, mineral baths, jacuzzi tubs, cold plunge pools, Vichy shower, and raindrop treatments are all forms of hydrotherapy – and they are ALL used as treatment for chronic pain. However, you don’t have to spend major bucks at a spa to get some of the same results!! How about a spa quality bath at home?
I have spent a lot of time researching the place that essential oils have in the treatment of chronic pain. It started out many years ago when an old friend of mine began to use different oils in her practice as a Registered Massage Therapist, and she used me as her guinea pig! I noticed a difference with certain oils she used, and went home and spent countless hours doing research on how I could apply this to my own treatment plan.
I came up with the most amazing bath salts, and whenever I was in severe pain I would pour myself a bath, and wash away some of the pain. I shared these bath salts with others, and they have worked for everyone who has used them! Keep in mind they are NOT a cure they are simply just another ‘tool’ to put in your tool belt to help you manage. I’d like to share the recipe with you!
*Note that ALL of the ingredients I have used can be found at any reputable health food store or online. The start-up cost can be around $75-$100 but your oils will last you a VERY long time! I only need to replace my essential oils once or twice per year – and I take TONNES of baths!!
RELAXATION BATH SALTS RECIPE
The base of your bath salts will be Epsom Salts. They are INEXPENSIVE and have a high concentration of Magnesium(great for chronic pain). Pour out 2 cups of Epsom salts into a plastic container.
You may now add a few tablespoons of baking soda or ground oatmeal if you would like, but you do NOT need to. I choose to skip this step, but if you have extremely sensitive skin, you may want to include it.
Next you simply get out your oils and add 3-5 drops of each! If you have sensitive skin, you may want to start out with 2 drops of each, but I have worked up to 5 drops of each oil. The oils along with their healing properties are listed below.
Add to your bath water, and VOILA!! a relaxing and powerful spa bath at home!!
These are the oils I use:
Basil - helps with exhaustion, muscle aches, rheumatism, flu like symptoms, and also can be used on insect bites.
Cedarwood – very helpful to bring down stress levels.
Chamomile – helps with insomnia, neuralgia, muscle aches, sprains and strains
Frankincense – helps with anxiety and stress (this oil can be one of the more expensive ones, so feel free to omit it if you would like.)
Juniper Berry – helps with cellulitus, rheumatism, toxin build up,
Lavender – helps with anxiety, cystitis, depression, earache, headache, rheumatism, insomnia, sprains and strains, stress, vertigo.
Marjoram – helps with aching muscles, muscles cramps, rheumatism, sprains and strains, stress.
*Please note that alternative medicine is STILL medicine, and should be used with your discretion or input from a health practitioner. I have used all of these oils, and they have been beneficial to ME. I have NEVER had a problem with them, BUT we are all different!
I hope you take the time to pamper yourself a little today! You deserve it!! If you have any questions about essential oils in general or this recipe, please feel free to ask them! And I would LOVE to hear feedback from anyone who tries these salts!! They have been a LIFE SAVER to me at times when I have been out of control with pain. I hope they work for you too!!
**If you are reading this anywhere other than www.gracefulagony.wordpress.com it is because this post has been stolen. Please click on the link provided to return to the site of origin
Fibromyalgia (FM) is a very common condition that affects approximately 5% of the female population. A partial list of symptoms associated with FM include widespread pain and includes fatigue, non-restorative sleep, generalized stiffness, memory problems, poor balance, headache, numbness/tingling, painful muscle cramps/spasms, depression, anxiety, back pain, jaw pain, and hypersensitivity to: noise, lights, odors (perfumes), and weather changes. It is important to note that FM is NOT a psychiatric disorder, and can be diagnosed and treated, though promising a cure is not realistic.
There are many websites and articles that one can access through the internet. This is not an endorsement for any one site but rather, a review of one site that is available. The “Fibromyalgia Information Foundation” (www.myalgia.com) offers a lot of information that is very informative and usable. This includes information on the condition, the diagnosis, treatment, exercise advice and more. For example, under “Treatment of FM,” it is stated that there is no “cure” for FM. Rather, the goal of treatment is to teach the patient to gain “control” over the condition rather than to have the condition control the patient. There are four major areas of treatment to concentrate on which include pain management, exercise, sleep, and psyche. For pain management, there are lists of different medications, manual therapies and physical agents that can be of benefit. Exercise is emphasized to be gentle stretching after warming up and not to exercise too aggressively, so as to avoid irritation. In addition to stretching, light non-impacting aerobic exercise such as walking, water exercises, and/or stationary bike are recommended with a gradual increase in dose. Starting out at short 3-5 minute sessions, 2-3 times per day and gradually increase the session duration to three, 10 minute sessions/day, then to 2 -15 minute sessions and eventually one 20-30 minute session/day may be wise.
Regarding sleep, all FM patients complain of interrupted, non-refreshed sleep and improving this pattern is important. If an underlying condition such as whiplash, back, neck, or shoulder pain is the cause of interrupted sleep, that condition should be managed. A sleep study to determine if sleep apnea is an issue and the use of a C-pap unit can be quite helpful in gaining restorative sleep. Multiple medications are listed with dose recommendations that can be shared with your primary care provider. Regarding the “psyche”… Because chronic pain can result in depression, anger, fear, withdrawal and anxiety, management of these issues is important. Early detection and treatment is ideal. Interventions can include activity management such as ergonomic modifications both at work and home such as weight lift/carry limits, computer station re-design, the use of headsets vs. phones, and modifying other irritating postures should be considered. A de-emphasis of medications and long-term health care provision without clear goals is important. Unless an underlying psychological condition is present, counseling may be non-productive. However, biofeedback and some behavior modification may benefit some patients that are having trouble coping with the pain and it’s effect on their life.
Chiropractic is an important player in the management process of FM and benefits the patient by helping them set realistic goals and offering management strategies to help achieve those goals. Patients with FM need a “quarterback” to guide them in this process for which chiropractic is a logical choice.
For more information visit www.backsmartchiropractic.com
Stress…a Fact of Modern Life.Stress may appear to be a disease of modern times caused by fast moving ever-changing lifestyles, but it has been with us since time began. Stress affects every aspect of our daily lives, including health, work, personal relationships, alcohol/drug abuse, and obesity. The pressures of life itself is not the main problem, rather how we react to it.Stress can contribute to depression, anxiety, and has diverse effects on many other functions and organs of the body. Stress levels can vary widely in identical situations and for different reasons. It is a highly personalized phenomenon. One survey showed that in a work situation, having to complete paperwork was more stressful for many police officers than the dangers associated with pursuing criminals.There is, of course, a huge cost associated with stress. For example, absenteeism is estimated to cost American companies $602 per worker per year. The price tag for large employers could approach $3.5 million
As my “readers”, coworkers, friends, and family know, I spent last week at the Mayo Clinic in Rochester, Minnesota. I ended up having to stay a day longer than expected and while I was there, had many tests/procedures done and (luckily) many things ruled out, which was a blessing!
I decided to sum up my trip as succinctly & easily as humanly possible!
The hospital itself was BEAUTIFUL – more like a combo of a hotel + museum than a hospital. They had art from Andy Warhol (his “flowers” collection – Loved it!) and others, and artifacts from when they opened in the late 1800’s, as well as gorgeous and unique blown-glass chandeliers, plates from the White House, an old-fashioned “carriage” ambulance, etc. Notably, almost everyone in Minnesota – especially the hospital staff and hotel ppl – were extremely nice, accommodating, pleasant and helpful! It WAS really cold (high temps of 5 degrees, windchill factors of negative 27!) but it is quite neat because there are enclosed walkways connecting everthing: hospital, mall, hotels, salons, restaurants, stores, etc.
Thankfully, while I was there, they ruled out: diabetes, thyroid/adrenal problems, diabetes. The neurologist also doesn’t think it is Multiple Sclerosis. While I am “at risk” for MS, and “on paper” have many symptoms, upon physical exam she was not impressed enough to want to do a spinal tap (lumbar puncture) especially since brain MRI from 6 months ago was normal. Yay! Also, my bloodwork did not indicate any malignancies, thank goodness! Lastly, my Rheumatoid Arthritis is showing as fairly under control from an inflammation standpoint – more in-control than it has been in years. I still do have pain (for instance, today = mega flare!) but, who knows, it could be from osteoarthritis or back problems or fibro or even from my Celiac Disease! (which is what I went to Mayo for in the first place.)
I got a few diagnoses, some of which I was already aware of, some of which I was not. Nothing that I am extremely upset about; most are not a big deal. I have osteopenia (this I knew of) which is the precursor to osteoporosis and means low bone mass/low bone density. I am borderline Vitamin D deficient, as well (from the malabsorption part of Celiac, which all of my problems are related to) and need to stock up on Vitamin D, Calcium & Vitamin K. Luckily, I like the Viactiv chocolate vitamin chews, they are gluten-free, and, I do not have to go on another medication for this! That’s a plus! I have slight hearing loss in the upper register, accompanied by nonstop tinnitus (ringing in the ears) – no tumors or blockages show up on MRI & my auditory canal looks fine upon exam! More good news! The rest of my audiology exam was fine and so they think that the ringing/slight hearing loss is from Celiac damage, or maybe even my past bout with Bell’s Palsy, and nothing they can really do, it is not particularly treatable or curable – I could have the ringing forever, or it could stop tomorrow – the slight loss is permanent but is not too bad that it affects my life. I’ve had this for almost two years, and at most, this will be a slight annoyance that I will, in time, not even notice, most likely! I have scoliosis, which means my spine is slightly curved, which I never knew….and also some sort of bump or bone fragmant on my C4 Cervical Spine that I’ll need to get looked at (again, something I didn’t know about, but it could be contributing to some pain, my knee problems, sore neck, headaches, etc.) Last but not least, I have a tiny cyst on my kidney but it is nothing at all to worry about according to doctors. Don’t know what it is from, but I don’t really care, since it isn’t anything to worry about! It is just something to monitor again in a few years and is basically not a big deal. Oh, and I was also diagnosed with chronic daily headaches and migraines, as well as slight neuropathy, all of which I already knew that I had. The neurologist at Mayo said she can’t say what caused/causes them but would guess they are Celiac-related, like everything else probably is.
My (third) upper endoscopy went quite well, it seems. As far as the surgeon could see “to the naked eye with the scope, everything looks ok…which is good! (In some past ones, there was visible intestinal damage.) They tried to get aspirations of stomach fluid but there was not enough to take samples of . They did, however, manage to take 8+ biopsies. While I was at the Mayo Clinic, I got an X-Ray of my spine, Bone Density test, 16 vials of blood taken, CT of abdomen/pelvis, and an upper endoscopy with 8 or 9 biopsies. I also had consults with gastroenterology, endocrinology, rheumatology, and neurology docs and gave some of my blood to be part of a Mayo Clinic Celiac Study. One test that they sent out may not be back for a month. This test was for autoimmune enteropathy. They are also looking for amyloidosis and Collagenous Sprue & true Refractory Celiac but since my endoscopy looked OK they do not think that it is either of these, and I hope not b/c these are more dangerous than regular Celiac, but like anything I will get through whatever it turns out to be!
I have to wait til all tests are back to get a true plan of treatment. For now, I am sticking with all of my meds/supplements and infusions, etc. along with the gluten-free diet, of course. Also, I am starting chiropractic treatments again. I recently joined a gym and hope to do more yoga, and am trying to eat very healthily as I’d mentioned in past blogs. (For instance, my dinner last night was spaghetti squash & split pea soup….yum! I’ve really limited sugar & dairy intake as well and try to eat organic when possible and also limit carbs….well…aside from on the weekend! haha) So for now, I wait. It seems most or all of my problems are from the Celiac Disease. It is unknown how long I had this for, and therefore may have had it without knowing, and therefore not treating it. My arthritis meds probably masked the symptoms of the Celiac Disease which was good on a “comfort” & “quality of life” level but which wasn’t great b/c I didn’t know I had it and so the disease progressed. As many of you know, most people do not have all of these complications with Celiac Disease, in fact, it usually isn’t a big deal at all….so if you get this diagnosis, do not be scared! (Also: just a tip. If an immediate family member has Celiac Disease, you are advised to be tested for it just to be sure! Many people have it WITHOUT presenting any symptoms!)
One good (GREAT) thing about the trip was that I got to eat a lot of GOOD YUMMY gluten-free foods & all the restaurants there have gluten-free menus and the food was amazing! (Raspberry creme brulee, pistachio gourmet gelato, cheese ravioli, pizza, all GF! OK, so I didn’t follow my little diet plan, other than staying gluten-free, of course, while I was there b/c I had to fast a lot and so I felt that I owed it to myself haha! And I had to drink liquid Barium Sulfate one day, so that night I felt like I deserved to eat something fab!) I also hate flying and was quite anxious over that, but all of the flights went well! I had appointments most days from 7:40 in the morning, until 5pm or later in the afternoon. So, there was not much free time and this is something you should be prepared for if you ever have to go. In fact, we ended up having to stay longer than initially expected – but they really did try to cram EVERYTHING in there! (My Mom and I DID manage to get fabulous steam facials at the salon/spa in our hotel, AND enjoy the pool/jacuzzi each night, which was nice! My wonderful boyfriend also surprised me with a sweet card and flowers sent to the hotel, so I did have some very nice moments during the trip and “made the best of it!” Photo to the right is my glowing skin, no makeup – except lipgloss – afterfacial….I was feeling refreshed and rejuvenated! I recommend that everyone get one at least once in life.)
I would recommend the Mayo Clinic to anyone who has unresolved health issues and who is able to be seen there. It is busy, but the hospital is easy to navigate, everyone is friendly, the doctors are very knowledgable and seem to actually care, and there are many neat and historical things to check out while you are there….to make the trip a little more pleasant!
Being there put a lot of things in perspective. It really makes you think that things aren’t that bad, when you see cancer patients, and you also see all the things that they test you for – any of which could have came back positive, and, in that moment, could have been life-changing. So I’m thankful that I went. I’m thankful that they were able to rule things out, and I’m certain that my health has nowhere to go but in the direction of better! At least, I hope
I’m also very thankful to have this as a venue in which to share my story. I try not to complain, so when I get to vent through writing and share ALL of the ups & downs, goods & bads, and the reality, simply stated, of every day life for myself and many others like me, it feels wonderful. No one should have to suffer silently, and, ya know, we all have our “down” days… but having an online community of support makes staying positive a little easier! One thing that saddens me is that some people – usually those without health problems – think that ’stating the facts’ is complaining. If I tell someone that I have a headache, or “oh my arthritis is flaring today” – I don’t see that as complaining. Do you? If I have a “the world is out to get me” bitter attitude, or whine 24/7, or do the whole “woe is me” thing – that is a different story. This is annoying, as are people who complain constantly about nothing, not knowing how good that they have it. (That’s a whole other blog in and of itself! Ha.) I complain about 1/10 … maybe even 1/100 … of how much I COULD be, and that’s more than some peopel do – I know many people are suffering and do not feel comfortable venting AT ALL. That isn’t fair to these folks. So I want to tell you ALL that if you are hurting – physically or otherwise – vent to me! Bring on the complaining! I truly don’t mind (if you do actually have real reason to complain)….because, for me, sharing your own story is part of the journey, part of dealing with your struggles, and, I think, a part of healing! Also: look at it this way – if someone asked how you felt one day and you were feeling fabulous and healthy and happy and said so, there isn’t anything wrong with that. However, if your health is bad, and your answer is, “hangin’ in there” or “not so hot today” or something along those lines – that is seen as negative to some. Why? It’s just as true an answer as “fine” — and a heck of a lot more honest! What are your thoughts? Should we have to mask our truth? No one wants to be friends with a Negative Nancy or a Debbie Downer, but, the reality is that these things ARE *our* reality! This being said, you do not have to become cynical, bitter, or pessimistic all the time – that’ll get you nowhere fast….and we have to learn to keep on smiling & to “play through the pain!” You can still be nice and sweet to others, be happy, and lead a wonderful and blessed life, but also still be honest and true to yourself and others about what you were going through. I think that it takes a strong person to be open and honest. So, I invite you all to share in my journey by sharing YOUR own stories, because, after all, one of my main purposes seems to be to let people know that no matter WHAT you are struggling with, healthwise or other, you are NOT alone!
Have you had an experience with Mayo Clinic, good or bad? Any questions for me about my trip/experience? Do any family members of yours have Celiac Disease? If you have questions about being tested or going gluten-free, let me know! Do you think that talking about your health is complaining? Please share any stories, thoughts, questions, and comments. I hope that all of your treatment plans are working, and that you are all on the path to wellness with me! Thanks for reading and for your ongoing support! I love the feedback and comments!
Stay well,
~ Ashley Boynes
Community Development Director
Arthritis Foundation, Western PA Chapter
“Voted Best Blogger in Pittsburgh!”
Click here for Entry # 1 in Ashley’s Journey to Wellness – Come Along for the Ride!
Click here for Entry #2 in Ashley’s Journey to Wellness - It Could Always Be Worse
Click here for Entry #3 in Ashley’s Journey to Wellness – Being a “Patient” Patient
Click here for Entry #4 in Ashley’s Journey to Wellness – X-Rays & Holidays!
Click here for Entry #5 in Ashley’s Journey to Wellness – Nutrition, “Hair-Pain”, Dermatofibroma & a Fresh Start!
Click here for Entry #6 in Ashley’s Journey to Wellness – Insomnia & the Mayo Clinic
Also check out our other Rheum for Wellness blogs and be sure to leave a comment and share with friends! Recent entries include a celebrity guest blog with singer & American Idol contestant Justin Williams (a cancer survivor at age 27!), a piece on the importance of sleep, an entry on advocacy, volunteerism, and the 2010 Advocacy & Kids Summit, and more! Check them out! Don’t forget to check out our chapter webpage, too, for exciting updates at: http://westernpennsylvania.arthritis.org and our new Arthritis Radio episode with Congressman Tim Murphy here!
I have been on hiatus for over a month now trying to prioritize the important things in my life and also to figure out just what direction I want to take this blog. I have struggled with making a decision because I am a lover of everything and it is difficult to narrow down what I am passionate about. This has led to the creation of numerous blogs that have gone untouched and has kept me from posting something that is really important to me because I felt it was not in line with this blog’s purpose. But, life is writing and writing is life and from now on this blog will be about both.
For those of you who don’t know, I was recently diagnosed with fibromyalgia and chronic fatigue syndrome. Over the past two years these undiagnosed conditions have wreaked havoc on my health, my energy, my spirit, and my dreams for the future. In fact, it has caused my entire life to come to a screeching halt. Along with this illness I am caring for my four year old whom doctors believe is autistic with Asperger’s and can become violent at any second for any reason or no reason at all. I use the work “think” because I have been unable to have him officially diagnosed and have been waiting for specialists to see him for nearly two years now. The waiting lists are so long and are soul crushing for any parent who desperately wants to seek and receive help for their child. As if that wasn’t enough, I also have a soon-to-be-eighteen-year-old son who will begin college in the fall. AND as if THAT is not enough, I lost my job in mid-December because of budget cuts.
What has all this done for me? It has made me stop and reevaluate my life and where I want to go. It has made me realize that I need to be more authentic in all my interactions. I am was a firm believer in perfectionism and never asking anyone for help. I wanted everyone to perceive me as the person who knew how to do everything. But this mask of perfectionism I am hiding behind is not serving me very well. So, I plan to be more authentic in my writing on this blog, to share with you my fears, my worries, and my truth.
The biggest truth that I can share with you right now is that I am terrified of writing. I do not know the first thing about writing and yet the idea of learning everything there is to know in order to become a great writer is overwhelming and stops me in my tracks. I have so many interests (law, politics, neuroscience, psychology, social work, mental health counseling, sociology, criminal justice, writing, reading – you get the idea) that I find it difficult to settle down into one specific area. It is the perpetual “the grass is greener on the other side” philosophy. What I do know for sure, though, is that I want to help people, I want to teach, and I want to write. That is where I have to place my focus.
To start, I would like to introduce my authentic self to you: I am a 36-year-old woman who is still not sure what she wants to do with her life and has not made it past step one in Life 101. I am a woman whose legs hurt so badly some days that she has to crawl out of bed or not get out of bed at all. I am a woman who spends many mornings locked in the bathroom in an attempt to avoid her four year old’s stinging punch to the face. I am the woman who has finally started the journey toward authenticity and finding her place in this often scary world. I hope that you will follow along with me.
Wow wasn’t planning on posting but looked and saw it has been awhile…lol… my how times flies when you are lost in the fog! I’d like to say I would do a “things lost and found” post but I’m just too foggy to think it through. We’ve had so many rainy days followed by very cold days and has left me in some of the worst pain I’ve felt in a very long time. I have gotten by with the use of only the fireplace for heat. It’s just me now and my birds and rabbit. Yes the boys are gone….. my youngest left for basic training at Fort Jackson and the teen I was fostering went back to his parent’s home. Boy, life alone and dealing with Fibro is time-consuming….. and energy draining….I’m trying to adjust to being on my own again. I haven’t been alone since getting this ill and stuck in bed most of the time. Everything takes twice as long as I thought it would and I am feeling my age…lol…haven’t been able to make it to the mail box or to the trash bin as both are about a block or so away…..in different directions too…. I’ll need to drive and that means portable O2 tanks…. so I gave in and asked for some help to take the trash to the bin and pick up the mail. I felt so bad…lol… I couldn’t remember which key to use to open the mailbox….. my friend had to make two trips just to get the right key and then told me there was a key in side my mail box and brought it back thinking I could tell him which townhouse had the #333….. but it was the key to open the large lock mailbox for packages…. so he went back for the third trip! I felt so bad about all the running around he was doing…. he even remembered the last time we talked that I said I had used the last of my shampoo and would try to make a trip to the store soon and he even brought that with him. There have been some unexpected problems I’ve run in to but with some help I have worked it out….lol….. the news paper that I have delivered on the weekend will now be put on my top doorstep and not in the middle of the driveway…..much out of reach with only my O2 tubing…..sometimes it’s the little things that throw you off balance…..which reminds me I have to be careful….. first day alone and I almost fell on my butt tripped on my O2 tubing and today hit the step stool and made to big toe and little one bleed….. hurt my foot and my pride….good thing about being alone…..no one to see me when I do something dumb! I have found that my stress level is lower now and that I tend to spend more time on the phone….. usually when caller ID shows unknown caller I don’t pick up….but now if I feel up to it I do and if it is sales person…..well I’ll yank their chain a little…. like today TV dish salesman I told him I got my cable free from the little gray aliens….talked about them for about ten minutes and when he asked how he could get hooked up with them. I told him to just give me HIS home phone number and I would have them give him a call or he could turn his porch light on and off five times wait and do it again until they come by……lol…..I don’t think he’ll be calling me back anytime soon. Took my mind off the pain for awhile…..well it’s time for this unscheduled transmission to come to an end… so be at peace, enjoy the quiet times and watch out for low flying aliens until our paths cross again…….. Lila
PLEASE NOTE THAT IF YOU ARE READING THIS POST AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG….” THEN WHAT YOU ARE READING HAS BEEN STOLEN AND IS BEING USED WITHOUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS http://www.lilabyrdakabirdladybyday.wordpress.com
One of the things I’m trying to do is cook more. A little more than a year ago, I worked myself into a nasty kidney infection and vertigo. It took months for the vertigo to go away, and during that time my boyfriend and I got into the habit of ordering food since I was too sick to cook and he too tired. But now, one year later, we’re stuck in the same pattern, and at this point its sheer laziness on my part (seeing as I’m the one without a job.) Of course I still have days that I feel really sick (fibromyalgia problems, the vertigo comes back when I have a cold), but that’s no excuse to not cook the times I am feeling well. But at the same time, fibromyalgia is a difficult balancing act: if I stress my body a little to hard one day, it makes me useless the next (and if it’s really bad, the day after.) With fibromyalgia and gluten sensitivity, everything thing you do has to be taken slow whether you like it or not. So I’m still not going to cook every meal, but am instead setting my goal of cooking two nights a week. I can do two nights a week.
I decided to try my hand at Greek food since it is really effective against my reactive hypoglycemia (part of fibro) and my boyfriend is part Greek. Win-win. So I picked up How to Roast a Lamb: new greek classic cooking by Michael Psilakis, mainly because it had a recipe for Avgolemono Soup, the one dish my boyfriend and I (and his mother) have horrendously failed at every single time.
Ironically, Avgolemono Soup is one of our favorite dishes and a staple of every Greek restaurant visit. For those of you that haven’t tried it, it’s kind of like the Greek equivalent of Chicken and Rice Soup. It’s chicken broth mixed with egg-lemon sauce (very common in Greek cooking) and either rice or orzo. Next time you’re at your neighborhood Greek restaurant, try it (I have yet to see a decent Greek restaurant that doesn’t have it.)
Last night I did not feel daring enough to make the Avgolemono and opted for “Pasta with Kima (meat sauce)” instead. Although some recipes in the book are quite challenging (like roasting whole lamb on a spit), this one was quite easy and yummy. I am no stranger to homemade pasta sauces; when I was a teenager, I often had dinner with my Italian neighbor and her family. But this sauce was unlike anything I had tasted before. I am used to Italian sauces, in which the tomato flavor freshly zings you tongue and is then followed by the meat. With the greek tomato sauce, everything harmoniously combined to form a single flavor identity that was both savory and sweet. A real treat!
Pasta with Kima
If you’re ever in the area, try Greek Islands. It is the best Greek restaurant I’ve ever been to, and is certainly one of the best (if not the best) in the Chicago.
I Was Poisoned by My Body: The Odyssey of a Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome and Multiple Allergic Responsesâ¦and Her life 10 Years … “New Revised and Updated” Review
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Gloria Gilbere is a doctor of traditional naturopathy and natural health, a homeopath, an Eco Ergonomist, and is especially known in alternative medicine for her approach to skin and body rejuvenation’. Therefore she brings a special expertise to “I Was Poisoned By My Body… I Have A Gut Feeling You Could Be, Too!”. Now in a newly revised and substantially updated edition, this compendium of commentary, description, analysis and advice covers everything from food allergies, chronic fatigue, arthritis, autoimmune disorders, and heartburn, to acid reflux, liver dysfunction, muscle pains, migraines, colon disorders, anaphylaxis, candid, and gluten intolerance. Of special note is Gilbere’s survey and discussion of environmental illnesses because she was able to reverse her own condition of fibromyalgia, leaky gut syndrome and multiple allergic responses with natural methods and has enjoyed her recovery for the past ten years now. Enhanced with the useful addition of resource listings for testing, products, colon hydro-therapy, ‘Consulting with Gloria’, education, drugs classified as benzodiazepines, as well as website information and support groups, “I Was Poisoned By My Body” also features an extensive bibliography and a comprehensive index. Informed and informative, thoroughly ‘reader friendly’, and an invaluable addition to the growing library of Alternative Medicine reference collections, “I Was Poisoned By My Body” is especially recommended reading for anyone suffering from environmentally influenced illnesses and allergies.
I Was Poisoned by My Body: The Odyssey of a Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome and Multiple Allergic Responsesâ¦and Her life 10 Years … “New Revised and Updated” Feature
I Was Poisoned by My Body: The Odyssey of a Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome and Multiple Allergic Responsesâ¦and Her life 10 Years … “New Revised and Updated” Overview
Gloria is one of a handful of internationally respected leading natural health researchers, practitioner, and an authoritative influence in the discovery of the causes, effects and natural solutions for invisible illnesses that defy conventional diagnosis and treatment. She is a leading advocate in identifying and reversing Multiple Allergic Response Syndromes (MARSâ„¢). This book reads like a detective story, guiding the reader to clues and solutions from every turn of the page. It is truly a personal odyssey that will open eyes, minds, and hearts to invisible gut causes and life-changing consequences for victims of complex autoimmune, inflammatory and digestive disorders. This second edition has the added advantage of the knowledge gained 10 years after her recovery and the insight gained from the thousands worldwide she has guided to health, naturally.
I Was Poisoned by My Body: The Odyssey of a Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome and Multiple Allergic Responsesâ¦and Her life 10 Years … “New Revised and Updated” Specifications
*** Product Information and Prices Stored: Jan 18, 2010 10:31:02 Not for everyone! – Y. Fus – Winston-Salem, NC United States I was hoping to find some sensible suggestions for calming sinus inflammation associated with food intolerances. Unfortunately this author’s approach to eliminating toxins from your system is more than I am willing to undertake. She advocates using chopsticks to examine your waste in order that you can make sure that you are effectively eliminating. I am not going to comb through my poop with chop sticks. I do not think that her advice is particularly practical for most folks. I regret having purchased this book and will take it to my local used bookseller asap. SO many people need this book and don’t even know it…yet ! – Suzanne Karasik – Los Banos, CA near SFO I have the older version and it helped me to heal and go on to become a nutritionist and help others. When I couldn’t find anyone who knew what was happening to me, thankfully I found this book. I highly recommend it as well as “Invisible Illness” if you want to learn about what is happening to so many people who are still clueless. Allopathic doctors don’t know these facts, they exacerbate the symptoms because they refuse to accept/learn the cause, mostly because it involves nutrition instead of pharmaceuticals – she will tell you everything you need to know ! Don’t hesitate if you know something just is not right, you must educate yourself. I’d love to go into details, but just get the book, it’s all in there !
“Celebrate! Celebrate! Celebrate! Dance to the music” . Perhaps some of you might be able to hum along to the chorus of this old song by Three Dog Night. Today I am celebrating since I had my last amalgam filling removed and replaced by a fancy high tech ceramic filling!
Yesterday, I talked about my reluctance to ask for help even from my doctor. But today as I sat in the dentist’s chair, I knew that without a doubt I had been receiving help these past months so that I can actually say I no longer have my neurotic fear of having dental work done! All of the past experiences as a child sitting in the dental chair are over! Part of that change belongs to my dentist who calls himself an old hippy! I learned to relax as he chatted, laughed and as we listened to old 60’s and 70’s music interspersed with the occasional Norah Jones. But I have had pleasant dentists before, and so I know that my change mainly belongs to God who heard my prayers and heard others praying for me that since I needed to see this dentist every month for a year, could He please “help me overcome my anxieties”. Yesterday my special friend who keeps lifting me up to God sent me some very appropriate Bible verses in response to yesterday’s blog. I think she wanted me to remember as my husband did who read it this morning – that even when we are reluctant to receive help from others and even when we receive imperfect help from others, we can receive perfect help from God. She wrote,
“Your ‘cry for help’ was heard. I immediately recalled that help is always available but not necessarily immediately visible. Psalm 18:6: “In my distress, I called to the Lord; I cried to my God for help” and in Psalm 121:1 : “I lift up my eyes to the hills–where does my help come from? My help comes from the Lord, the Maker of heaven and earth”. Verse 8 says ‘the Lord will watch over your coming and going both now and forevermore.” It does not say He will remove your affliction but will ‘BE THERE’ for you. I agree that sometimes it does not feel like it is enough but like the mother who holds her child with the scraped knee, she cannot make it better but she can ‘be there’ to help him get through the pain. Hopefully, this is what can keep you going as well. Hang in there…you are not alone.”
Well, today I am not only celebrating the fact that my dental work is complete but that I believe “My help comes from the Lord”! Now I just have to remember that “the Lord will watch over (my) coming and going” when His Help doesn’t seem quite as clear!!
Last night I was watching an episode from the Television series, House. In the story, the male patient’s frontal lobe was not working so that he could not filter any of his thoughts and he said everything that came to his mind. He made rather shocking, hurtful and insulting comments to everyone including his wife and his daughter. By the end of the story, House had of course discovered the nature of the problem. However, as his wife was wheeling him to the car, he asked her if his daughter was upset with him. She said, “No, children are pretty resilient.” However, there was a serious inference understood by her body language that she would have great difficulty trusting his comments since she now “knew” what he was really thinking.
I began wondering what kind of words would come out of my mouth if they were not being filtered by what I perceive to be acceptable or kind or reflect whatever persona I have developed. As someone who has had a lot of limits imposed on her life for the last decade, would I be surprised by the amount of whining, complaining, and judging negative comments that might slip out of my mouth? Like the patient in House, would I later be mortified and embarrassed?
I once read that the brain is like a computer. It inputs information and does not distinguish thoughts or opinions from facts. In other words, thoughts that I may not even believe all of the time are being added to my brain’s data bank as factual. One day, in a whining mood, I may think , “My doctor doesn’t know what he is doing! I am an idiot to actually believe that he can cure me!” My brain’s distorted perception of truth has now recorded that my doctor is an idiot and that I too am an idiot! This kind of data is most definitely not going to promote my wellness!!
As another component to optimizing my healing environment I should heighten my awareness of all of my thoughts! I have heard the suggestion to wear an elastic band and pull it every time a negative thought occurs. However, I suspect the most insidious thought is the one that appears rational and logical and I might excuse it since it “speaks a truth” . Those thoughts might be harder to identify as negative and might cause me to resist pulling that elastic band! And the real question is whether that kind of temporary pain will actually cause me to improve my thoughts?
Perhaps guarding our thoughts is like the analogy of identifying counterfeit money. I once heard that people who are trained to identify counterfeit money are not shown those dollars. Instead they just spend lots of time analyzing the real money! In other words, perhaps the most effective strategy is to intentionally add positive thoughts to my brain’s data bank by speaking positive affirmations, reciting Bible verses, listening to positive uplifting music etc. It could become quite an exciting game as I assess how much helpful healing information I have been able to file away in my brain’s amazing recording system each day! I don’t consider myself as an overly negative person, but I suspect the cumulative effect of such a purposeful positive endeavor could only increase the healing momentum!
Philippians 4:8 says, “Finally, brethren, whatever things are true, whatever things are noble, whatever things are just, whatever things are pure, whatever things are lovely, whatever things are of good report, if there is any virtue and if there is anything praiseworthy – meditate on these things”
Tight neck muscles, compressed spinal joints and shortened fascia can contribute to decreased blood flow to the head, brain and spinal cord leading to pain and neurological symptoms. Come to his free evening presentation to learn what manual therapists can do to increase muscle relaxations, joint mobility, improved blood flow and ways you can help yourself.
Kim Burnham, PhD will be speaking at Mission Hills Physical Therapy over the next two weeks. I will update with time/date in a few days.
Well it’s 2010, a new year, a new decade. After doing my Close the Year 2009 yesterday I’ve now done my intention or resolutions for 2010, what I’m aiming for and what I would like to see happen over the course of the next year.
My post is on my blog For The Hole Inside Everyone and it’s called Start the Year: Resolutions 2010.