Friday, November 27, 2009

Update of progress

I haven’t written an article here for ages.. well so it seems anyways.. Right this is where I am right now and its a long way from those dark days that were happening to me for weeks, months and the best part of this year… I am now getting back to normality or whatever that is.. but I am on the mend and long may it continue…

What has brought about this dramatic change in my condition.. Well to be honest, I stopped taking just about every tablet the doctor had told me to take, the amitrypeline were making me mental and sleepy adding to my already sleepy self and I think it took the last bit of energy out of my system. I also started forcing myself when I had to rest, was to stay awake and try anything to get my mind going…

I am not cured not by any means, but what I will say is I feel totally re-energised and alive, my moods have changed back to me being my normal funny self what a difference a few weeks makes but I have tried so hard to get to this point and didn’t think it would happen to be honest, but I hadn’t given up hope…

I dont know if this blog will ever help anyone but its a very very small record of maybe how I was feeling when I had the energy to type out some lines.. I hope though people can read this and they can see an end to Fibromyalgia or at least to their nightmare.. keep trying and keep your chin up, remember your special and the world needs you..

Not sure if this will be my last post but for now, I dont have anything to write about FM and the chronic fatigue I was suffering “and my family too”…

Thanks to anyone who will ever come across this blog..

[Via http://meandmyfibro.wordpress.com]

Monday, November 23, 2009

My Fibromyalgia Update

Fibromyalgia has been, at least for me, a constant balancing act of trying to use the right meds at the right time and balance that with activity and rest. Although I may find a regimen that works great one day, there is no guarantee that it will continue to work another day.

So I’ve been playing with sleep aids, which seems to be where most of my troubles lie. I don’t remember when I’ve had a good night sleep and woke up refreshed (actually, I do remember one day in February of 2007). How sad.

And lately I’ve been having lots of nights with active dreaming again. Makes me tired just to think of it. I’ve had lots of dreams about houses; so big and complicated you need GPS just to get around.

One of my really good friends is a nurse and also very in to natural medicine. She works the late shift so sleeping cycles can be very challenging for her, too. Lately she’s tried L-tryptophan, the amino acid that’s found in turkey that makes everyone sleeping on Thanksgiving afternoon. She said it has really worked great for her.

So I decided to give it a try. Wow! I’ve actually gotten 2 good nights sleep (not to say they were dreamless) but I wasn’t exhausted when I woke up. I actually feel good! Amazing!!!! I forgot how much energy I could have when I feel refreshed!!!! It’s definitely an exclamation point day!!!! I’ve already offered up thanks to God; now I’ve got to call my friend. She’ll be so pleased for me.

I hope this continues for a long time, but I’ll enjoy it for however long it lasts. I’m off to conquer the world!!!

Until next time…

[Via http://glaumland.wordpress.com]

Thursday, November 19, 2009

If Wishes Were Hotdogs

Wow, it’s been forever since I blogged. It hasn’t been because I don’t have anything to say, it’s just been because…well, life has been wacky lately.

I’m finally off the meds that turned me into an anti-social zombie. So now I’m spending lots of time trying to get my life back in some sort of order. It’s been challenging, but it’s much better than the alternative. I feel like a real person again.

I was feeling sorry for the dogs, since the time change has meant that we don’t spend as much time outside with them. So Santa came early and brought them a couple Kongs (hard rubber toys with room inside for treats).

They were so happy, because tonight I filled them with hotdogs! The pups didn’t know what to do…they kept running back and forth to make certain the other Kong didn’t have more goodies than theirs, then ran back to try to figure out how to lick a hotdog out of the center.

Ha, ha, ha…mind games with puppy dogs – I can definitely win that battle! (Probably)

Until next time…

Monday, November 16, 2009

Progress

Im feeling a bit more upbeat today and as you see from my last post, sometimes it just gets a bit much but then you grit your teeth and grin and bear it and just get on with what life throws at you..

My freind came up today and started the first part of his case study and tried out some techniques for reversing my mental attitde to F.M and how it affects me and probably help others around me too as they cope with me..

I will try and get some notes from him and post them online, from what I can say from the first session.. its good and his time will be well spent “i hope” further updates will keep you informed of my progress…

Anyways I hope this week holds out better, today I only had two real points of fatigue.. heavy though but im still challenging it as best I can…

Wednesday, November 11, 2009

Krakow Photos

Sorry for not getting these photos up sooner – I work at the local performing arts center and we had RENT in town last week, so I have been extremely busy between working the ticket office and seeing the show five times! I am a huge Anthony Rapp fan, and as he and Adam Pascal were both in the tour, I soaked up as much RENT as I could.

Now back to reality…I have added the photos from Krakow, Poland. I’ll attempt to get Gdansk and Warsaw up later this week, now that the passionate singing and acting of Anthony Rapp aren’t in town to distract me.

Monday, November 9, 2009

What mattress is better for my bulging discs

I have a Natures rest mattress that is about 4 years old. I have bulging
discs in L4/L5 region and it is not comfortable sleeping on the natures
rest. I have a Kingsdown emerald crowne which better but no perfect. I
am 5′3″ and about 200 lbs and my husband is 5′10″ 185 lbs. Any thoughts
on a better mattress

You might consider an interlocked coil system….like the Sealy Posturepedics. The more rigid base support works well with disc problems. The two you’ve had provide a more contouring support, which obviously doesn’t to work for you. A Reserve Series Posturepedic in a cushion firm with a latex topper will give you support, comfort and longevity.

Friday, November 6, 2009

Help for Fibromyalgia Sufferers

Fibromyalgia and Exercise

 

Gentle exercise from EverydayHealth.com

from WebMD

If you have fibromyalgia with painful tender points, deep muscle pain, and fatigue, exercise is probably the last thing on your mind. Yet did you know that exercise may be just what the doctor ordered? Whether it’s daily walks, stretching, swimming, yoga, tai chi, or Pilates, low-impact exercise programs can keep you fit in spite of your fibromyalgia and may help reduce pain as well.

Why Is Exercise Important for Fibromyalgia?

Experts believe that exercise is essential for keeping muscles strong and flexible, controlling weight, and helping you stay active in other areas of life. In fact, exercise and activity allow patients to have some control over fibromyalgia and the amount of pain they feel.

It used to be that doctors thought that exercise might worsen fibromyalgia symptoms or accelerate the disease. So doctors encouraged patients to seek rest, not activity. But recent scientific studies have shown that, for most patients, range of motion, strengthening, and aerobic conditioning exercises are safe and necessary.

Does Exercise Boost Endorphins in Those With Fibromyalgia?

Studies show that exercise helps restore the body’s neurochemical balance and triggers a positive emotional state. Not only does regular exercise slow down the heart-racing adrenaline associated with stress, but it also boosts levels of natural endorphins — pain-fighting molecules that may be responsible for the well-known “runner’s high.” Endorphins help to reduce anxiety, stress, and depression.

Does Exercise Boost Serotonin in People With Fibromyalgia?

Serotonin is a neurotransmitter in the brain that scientists have found to be related to fibromyalgia. Neurotransmitters are brain chemicals that send specific messages from one brain cell to another. While only a small percentage of all serotonin — 1% to 2% — is located in the brain, this neurotransmitter is believed to play a vital role in mediating moods.

Studies have found that too much stress can lead to permanently low levels of serotonin. That, in turn, can create aggression. An increased level of serotonin in the brain is associated with a calming, anxiety-reducing effect. In some cases it’s also associated with drowsiness. A stable serotonin level in the brain is associated with a positive mood state or feeling good over a period of time. Lack of exercise and inactivity can aggravate low serotonin levels.

How Is Serotonin Related to Women and Fibromyalgia?

It appears that women may have a greater sensitivity to changes in this brain chemical. Mood swings during the menstrual cycle, menopause, or following the birth of a child may be hormonally induced through the action of the hormones on neurotransmitters.

Various factors — such as sunlight, certain carbohydrate foods, some hormones, and exercise — can have a positive effect on serotonin. Exercise acts as nature’s tranquilizer by helping to boost serotonin in the brain. Studies have also shown that exercise triggers the release of epinephrine and norepinephrine, hormones that are known to boost alertness. For those who feel “stressed out” frequently, exercise will help to desensitize your body to stress.

What Are Other Benefits of Exercise for Those With Fibromyalgia?

Regular exercise benefits people with fibromyalgia by doing the following:

  • burning calories and making weight control easier
  • giving range-of-motion to painful muscles and joints
  • improving a person’s outlook on life
  • improving quality of sleep
  • improving one’s sense of well-being
  • increasing aerobic capacity
  • improving cardiovascular health
  • increasing energy
  • placing the responsibility of healing in the hands of the patient
  • reducing anxiety levels and depression
  • relieving stress associated with a chronic disease
  • stimulating growth hormone secretion
  • stimulating the secretion of endorphins or “happy hormones”
  • strengthening bones
  • strengthening muscles
  • relieving pain
What Types of Exercises Work Best for Fibromyalgia Symptoms?

Some new findings suggest that exercises such as walking, strength training, and stretching activities are effective at improving physical, emotional, and social function. They also are effective in addressing key symptoms and self-efficacy in women with fibromyalgia who are also being treated with medication. Other studies point to long-term aquatic exercise programs — such as water aerobics — as being effective in reducing symptoms and improving the health-related quality of life of the participants.

As you begin your exercise program, focus on three different types of exercise:

  • Range-of-motion or stretching exercises. These exercises involve moving a joint as far as it will go (without pain) or through its full range of motion. Range-of-motion exercises or stretching will help you maintain flexibility in your muscle groups. Talk to your doctor or physical therapist ab

    Light weight training from PsychologyToday.com

    out range-of-motion exercises. They can explain how to do these exercises properly and give you some guidance if you have difficulty performing the stretch.

  • Endurance or conditioning exercises. When you increase your endurance threshold with cardiovascular forms of exercise such as walking, biking, or swimming, you do more than simplystrengthen your muscles. You also condition your body, tone your muscles, and build coordination and endurance. In addition, endurance exercises help with weight loss.
  • Strengthening exercises. These exercises help to build strong muscles and tendons needed to support your joints. Some studies show that strengthening exercises may improve fibromyalgia symptoms. Be cautious not to hurt yourself when doing strengthening exercises. A personal trainer or fitness expert can explain how to use resistance, starting slowly and increasing as you build your strength.
Can Low-Impact Exercises Help Flexibility and Stress in Fibromyalgia?

Low-impact aerobic exercises have been shown to improve symptoms and restore muscle strength in people with fibromyalgia. Some helpful exercises include:

Yoga pose from Yoga For Blood Pressure Blog

  • Yoga – an ancient form of exercise that can reduce stress and relieve muscular tension or pain by improving range of motion and strength. Practicing yoga for fibromyalgia when you are feeling tense or anxious may help you reduce stress and the risk of injury when you are on the job or at home.
  • Tai chi – a series of flowing, graceful movements that can give you a good workout and stretching regimen. Studies show that tai chi participants also increase their sense of balance, can bend easier, and are better able to do household tasks. With fibromyalgia, tai chi can keep your back flexible and strong.
  • Pilates – a form of exercise that focuses on breathing and strengthening the torso muscles. With Pilates, an instructor will help you work on postural muscles that are essential to supporting the spine.
Can Water Therapy Help People With Fibromyalgia?

Yes. If you have fibromyalgia, water therapy can give you good results. Water therapy strengthens and conditions as you move your body against the water. Water supports your weight during movement, which helps alleviate any impact on muscles and joints.

The water alleviates the force of gravity and provides buoyancy as well as mild resistance. Whether stretching in the water, using a kickboard as a floatation device as you push and kick, or swimming using slow, gentle strokes, water therapy can provide a gentle form of conditioning. That makes it quite beneficial for people with fibromyalgia.

How Can I Get Started Exercising With Fibromyalgia?

If you have fibromyalgia and want to start exercising, it’s important to start slowly. Begin with stretching exercises and gentle, low-impact activity, such as walking, swimming, or bicycling. Muscle soreness is normal when you are just starting an exercise regimen. But if you have sharp pain, stop and call your doctor. You may have overworked or injured your muscles.

Are There Exercises to Avoid With Fibromyalgia?

There are no particular exercises to avoid if you have fibromyalgia. Aerobic exercise (running, jogging), weight training, water exercise, and flexibility exercises can all help. Golf, tennis, hiking, and other recreational activities are also healthful. If you have other medical problems or if you’re planning more than a moderate-intensity exercise program, discuss your plan with your doctor before you start.

More information at WebMD.

What if Conventional Exercise is Too Painful or Difficult for Some Fibromyalgia Sufferers?

From ProHealth wesbite, full article here.

Fibromyalgia and ME/CFS specialist Dr. Charles Lapp suggests redefining “exercise” for Fibromyalgia  patients.  Perhaps a better word would be “movement” or “activity.”  He says the main thing is to avoid strict bed rest, which causes deconditioning, which in turn makes symptoms worse.

Important FM “exercise” tips:

  • Move your body as much and as often as you are able – even if it’s just walking to the kitchen for a glass of water.
  • Deep breathing exercises – learning to breathe from the lower part of the diaphragm – is essential.

    Deep breathing from Anxiety Therapy Online

    Shallow breathing increases neck and shoulder pain and can cause chest tightness, shortness of breath and spasms in the postural muscles.  Deep breathing eases tension and improves the circulation of oxygen in your body.

  • Stretch your muscles periodically throughout the day.  Begin slowly with seated stretches.  After several weeks, if you are able, progress to standing stretches.
  • When you first begin any new type of exercise, begin very slowly.  Depending on the severity of your illness, start with as little as one minute and build up very gradually (i.e., spend several weeks at each level).
  • Take frequent rest breaks.  Try resting three minutes for each minute of exercise.  Once you’ve moved into strength training or cardiovascular exercise, it’s a good idea to only exercise every other day, allowing yourself a day of rest between workouts.
  • Break up your exercise sessions.  Five three-minute sessions are better for FM patients than one fifteen-minute session.
  • For those who are able to tolerate a longer period of exertion, water exercise may be a good option.  Water’s buoyancy decreases the effects of gravity, displacing 85 percent of your weight.  As a result, it takes less effort to move because you don’t have to support your whole weight.  Also, immersion in water promotes relaxation, reduces muscle fatigue and lessens pain perception.

Tuesday, November 3, 2009

BEWILDERED ABOUT APPLYING ESSENTIAL OILS

Yesterday I ordered the three essential oils I was told might help with my multiple chemical sensitivities.  Oddly, what caused my greatest confusion was how to apply this oil.  The aroma therapist told me to use 5 drops of Lemon, 5 drops of Geranium Egyptian, and 2 drops of Benzoin.  Now what?

I had taken a book out of the library called Essential Oils by G. Gary Young and I began skimming this rather large text trying to discover what I do when these oils arrive!  I learned that the English model of application suggests that you dilute a small amount of the essential oil in a vegetable or massage oil and rub it into your skin.  The French model prescribes undiluted topical application or even to ingest it by putting it on a piece of bread!  And the German model focuses on inhaling the oils.

With that information, I was still trying to figure out if I can fill a container  with this combination of drops or do I mix these drops each day.  If I combine the drops for more than one day, I still had to determine how to measure 25 mls each time!  I began thinking that a syringe would be ideal.  The aroma therapist mentioned adding the oils to a favorite cream or adding them to water and spritzing it on me.  However, I am still back to the same dilemma of knowing how much to use!  She seemed to reiterate the importance of using just that amount each day and no more.

I finally ordered two containers – one a small jar and the other a serum spray.  I still have no idea what I am going to do when the oils arrive.  In fact, I have begun wondering if I should order a diffuser and just sit by it and burn the oils.  But then how long does it take for the oils to burn?  I am rather embarrassed that I am stuck on a problem that is most likely obvious to everyone else!  However, I admit that I am bewildered!

Monday, November 2, 2009

Why being stuck in a perspective keeps us, well, stuck...(and unwell)

“Out beyond all ideas of right-doing and wrong-doing there is a field – I’ll meet you there”
Rumi, Sufi mystic and poet

One of the lessons I have been learning recently is how being attached to a particular outlook or perspective can prevent us from getting well. These perspectives are indicative of underlying beliefs and paradigms about life, which become so transparent we do not even see them. However, not seeing them does not mean they are not there or are not affecting our overall health.

So why do I say that being stuck in a perspective can prevent us from getting well, ie, keep us ill? Because underneath the perspective / belief / paradigm will usually be some FEELINGS which we are usually subconsciously avoiding by staying stuck in our perspective. It is these deeply repressed feelings which are blocking our cells and keeping us less than well – infact literally internally divided – which we need to get in touch with.

The interesting thing is, these perspectives usually play out as ‘the need to be right at all costs’. And at some point, we come to realize that if we wish to make progress, we are going to have to go beyond ideas of right and wrong. This is a huge ask for many people, as it requires humility, courage and vulnerability, plus the ability to feel old unwanted feelings.

To give an example which will help understand what I am talking about:

Last year I agreed with a friend to work on a project. We decided which tasks each of us would do, and due to his tasks needing to be completed first, I waited until he had completed his before beginning. The next thing I knew, a week later, I received an email to say he had completed both sets of tasks. My feathers were immediately ruffled as I had been looking forward to my part of the project. I immediately put my Mickel Therapy tools into place by saying ‘How I felt’ about what had happened (key 2) and what I would have liked (key 3). This was all well and good and my body felt better for speaking my truth.

However, he then rejected what I said, (in other words, he had ‘another perspective’, while I had mine), and it was apparent that ‘never the twain shall meet’. I was deeply hurt and shocked that he did not see ‘my point of view’ as our agreement over tasks had been quite clear.

At that point, I realized that the only person that could do anything about this situation was me. I started to ask myself, OK, what’s this situation REALLY trying to teach me? And more to the point, what I am actually FEELING?

I realixed that huge feelings of betrayal and injustice were rising up inside. And I sensed that I had come to that critical point where I had to ‘let go of the story’ (whatever that story was, and whether I felt I was ‘right’), and give myself permission to allow and feeling those feelings.  And to allow myself to feel the feelings without any attachment to the story my mind was attaching to them.

So I very consciously chose ‘yes, I choose to feel what I am feeling right now’, without being attached to the story. And so the healing commenced.

It was excruciating, as I tapped into the pain in my heart that had been there for years, which I was avoiding by staying in wanting to be right. I felt like my heart had been sliced open with a pairing knife, and that a writhing mass of snakes and puss was pouring out. (Sorry for the less-than-savoury graphic description, but this was exactly what it felt like).

There was nothing logical to this event. And there was nothing I could do to lessen the pain by thinking about it or rationalizing it away. I simply had to feel it. These were feelings that had been ‘festering’ inside of me for years, and I had been avoiding feeling by protecting and surrounding the heart with criticalness and judgement. It was time to let it go. The process lasted about 3 days, where I went through despair and heart-pain like I had never experienced before. Even so, I knew that a great healing was taking place, and that this was a gift.

And for the first time I understood the saying by the wonderful mystic Rumi “Out beyond all ideas of right-doing and wrong-doing there is a field – I’ll meet you there”.

When we learn to let go of our perspective and transcend right and wrong, (even if we know we were ‘right’), we take ourselves to a bigger perspective where we see that everything that happens is there to help us evolve into a better and bigger person. From a health perspective, that pain that had been inside my heart, blocking my cells, was gone forever, freeing up my ability to be more compassionate and loving towards both myself and others. Even though it was emotionally excruciatingly painful at the time, I am eternally grateful for the lesson.